Expressing support for the designation of the third week of October as "National Hunter Syndrome Awareness Week".
Sponsor

- Progressive Groups$400k
- Climate & Environment$1k
Full profile: /officials/F000477
Source: Congress.gov · FEC
Cosponsors (0)
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No cosponsors on record. Bills can pass without cosponsors — this often means the sponsor introduced the bill alone, either because it's a messaging bill, a chairman's mark, or simply early in the legislative cycle.
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Committee Activity
Currently in
- House Committee on Energy and CommerceReferred To · 2026-10-19
Plain-English Summary
Plain-English summary pending. Introduced on 2026-10-19. Check back soon — summaries are generated as bills progress through Congress.
Full Bill Text
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[Congressional Bills 119th Congress] [From the U.S. Government Publishing Office] [H. Res. 1631 Introduced in House (IH)] <DOC> 119th CONGRESS 2d Session H. RES. 1631 Expressing support for the designation of the third week of October as ``National Hunter Syndrome Awareness Week''. _______________________________________________________________________ IN THE HOUSE OF REPRESENTATIVES October 19, 2026 Mrs. Foushee submitted the following resolution; which was referred to the Committee on Energy and Commerce _______________________________________________________________________ RESOLUTION Expressing support for the designation of the third week of October as ``National Hunter Syndrome Awareness Week''. Whereas Hunter syndrome, also known as Mucopolysaccharidosis Type II (MPS II), is a rare genetic disorder affecting approximately 1 in 100,000 to 170,000 live male births worldwide; Whereas Hunter syndrome is caused by a deficiency of the enzyme iduronate-2- sulfatase, resulting in the harmful accumulation of complex sugars in the body's cells and leading to progressive damage to organs and systems, including the brain; Whereas symptoms often appear in early childhood and may include developmental delays, physical impairments, and a significantly shortened lifespan; Whereas early diagnosis and intervention are critical to improving quality of life and outcomes for individuals affected by Hunter syndrome; Whereas increased public and medical awareness can lead to earlier diagnoses, better treatment options, and expanded research efforts toward potential therapies and a cure; and Whereas families affected by Hunter syndrome face extraordinary emotional, financial, and medical challenges, and deserve greater support, understanding, and advocacy: Now, therefore, be it Resolved, That the House of Representatives-- (1) supports the designation of ``National Hunter Syndrome Awareness Week''; (2) encourages Federal agencies, research institutions, and advocacy organizations to expand efforts in education, research, and the development of treatments for Hunter syndrome; and (3) urges continued congressional support for funding rare disease research and initiatives that directly benefit individuals and families in the Hunter syndrome community. <all>
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